Norwalk, CT — July 8, 2014
MORE magazine is on sale now with the feature article, One Of These Women Might Save Your Life, featuring the Multiple Myeloma Research Foundation Executive Chairman of the Board of Directors, Kathy Giusti. MORE writer Nancy F. Smith writes about four visionary leaders and how they may help you and your family live longer: “Deep in the trenches of the war on cancer, these researchers—and one fund raiser—are responsible for a spectacular number of life-extending advances. Studies exploring the human genetic code and the spread of cancer cells are yielding treatments…new information technology is helping doctors put innovations into practice. And while women are generally underrepresented in the sciences, many are at the forefront of this particular fight.”
After being diagnosed with multiple myeloma in 1998, Kathy Giusti founded the MMRF with the hope of one day finding a cure for this fatal blood cancer. With the help of extraordinary partners, she and the MMRF identified barriers slowing drug development, particularly in an uncommon heterogeneous disease like multiple myeloma, and developed collaborative models to overcome those obstacles.
The MMRF is a reflection of the outstanding researchers, clinicians and industry partners who have helped build game-changing models in tissue banking, genomics, clinical trials, and open access—leading not only to transforming myeloma research, but becoming the blueprint for other cancer organizations around the world.
MORE said: “Other cancer experts say they are impressed by Giusti’s success in imposing discipline on the research process. ‘I tried for almost 10 years to do at the National Cancer Institute (NCI) what Kathy Giusti has accomplished at the MMRF: to institute uniform guidelines on how to collect, store and access tissue samples,’ says Anna D. Barker, former deputy director of NCI from 2002 to 2010.”
GIUSTI ON HOW TO MAKE RESEARCH HAPPEN: Only 24,000 Americans are diagnosed with multiple myeloma every year, making it too rare to interest most researchers and pharmaceutical companies to study the disease or work on treatments. “I quickly discovered that scientists go where the funding is, so I knew I had to start a research foundation,” Giusti told MORE. “If you don’t raise money and provide research grants, you’ll never attract scientists, and if scientists aren’t working on a cure, there isn’t going to be a cure.”
For more information on Kathy Giusti and the MMRF click on www.themmrf.org
About the Multiple Myeloma Research Foundation (MMRF) The Multiple Myeloma Research Foundation (MMRF) was established in 1998 as a 501(c)(3) non-profit organization by twin sisters Karen Andrews and Kathy Giusti, soon after Kathy’s diagnosis with multiple myeloma. The mission of the MMRF is to relentlessly pursue innovative means that accelerate the development of next-generation multiple myeloma treatments to extend the lives of patients and lead to a cure. As the world’s number-one private funder of multiple myeloma research, the MMRF has raised $250 million since its inception and directs nearly 90% of total budget to research and related programming. As a result, the MMRF has been awarded Charity Navigator’s coveted four-star rating for 11 consecutive years, the highest designation for outstanding fiscal responsibility and exceptional efficiency. For more information about the MMRF, please visit: www.themmrf.org.