Resources

Patient Resources

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Download MyMMRF Literature

As the leading multiple myeloma research organization, we are committed to sharing the latest and most accurate information with you. Please download these booklets and make your own notes as you read through them. The more you learn about multiple myeloma and its treatments, the more empowered you wil be in your multiple myeloma journey.

Managing My Myeloma
Resource Brochure

Multiple Myeloma
Disease Overview

Multiple Myeloma
Treatment Overview

Download the Accelerator Magazine

The Accelerator is the official magazine of the MMRF is issued twice a year to keep our stakeholders updated about noteworthy initiatives and other news. The current issue as well as the past issues can be downloaded below.

Fall/Winter 2015

Summer 2015

Fall/Winter 2014

Pharmaceutical Reimbursement Assistance Programs

Amgen Inc.
Product: Neupogen
Website: Amgen Assist
Services: Financial help
Phone: 1-800-28-AMGEN

Celgene
Products: Pomalyst, Revlimid, Thalomid
Website: Celgene’s Patient Support Solutions
Services: Financial help, understanding your insurance, starting your medication, forms and resources
Phone: 1-800-931-8691
Email: patientsupport@celgene.com
FAX: 1-800-822-2496

Genentech
Product: Rituxan
Website: Genentech Access Solutions
Phone: 888-249-491

Janssen
Product: Doxil
Website: DOXILine Reimbursement Assistance
Phone: Janssen Prescription Assistance Reimbursement Hotline 800-609-1083

Novartis
Products: Aredia, Zometa
Website: Novartis Reimbursement Assistance – Zometa
Phone: Reimbursement Hotline for Aredia 800-282-7630

Onyx
Website: Onyx Pharmaceuticals 360™
Phone: Onyx 360 reimbursement and patient support services 1-855-ONYX -360 (855-669-9360)

Takeda Oncology Company
Product: Velcade
Website: Velcade Reimbursement Assistance Program (VRAP)
Phone: 1-866-835-2233, Option 2

Caregiver & Mentor Resources

4th Angel Patient & Caregiver Mentor Program
About: 4th Angel is a national nonprofit organization that provides free, one-on-one, confidential outreach and support for cancer patients and caregivers. This program is a part of Scott Hamilton’s CARES initiative.
Website: 4th Angel Patient & Caregiver Mentoring Program

Cancer Hope Network
About: We are a national non-profit organization that provides free and confidential one-on-one emotional support to cancer patients, their caregivers, and their family members.
Website: Cancer Hope Network
Phone: 1-800-552-4366

Help for Cancer Caregivers
About: We are a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer.
Website: Help For Cancer Care Givers

Imerman Angels One-on-One Cancer Support
About: Provides personalized connections that enable one-on-one support among cancer fighters, survivors and caregivers.
Website: Imerman Angels One-on-One Cancer Support

National Family Caregiver Action Network
About: We are a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.
Website: National Family Caregiver Action Network

Transportation to Treatment

Air Care Alliance
About: Our program promotes, supports, and represents public benefit flying through communication and cooperation among organizations facilitating flights for health, compassion, and community service.
Website: Air Care Alliance

Corporate Angel Network
About: We are the only charitable organization in the United States whose sole mission is to help cancer patients access the best possible treatment for their specific type of cancer by arranging free travel to treatment across the country using empty seats on corporate jets.
Website: Corporate Angel Network
Phone: 1-914-328-1313

National Patient Travel Center
About: National Patient Travel HELPLINE - Our HELPLINE is available 24/7. A growing list of national medical and disease organizations utilize this HELPLINE to assist their constituency with charitable medical transportation information and referral.

Airline Tickets for Patients/Escorts - Our National Patient Travel Center is the only single source in the nation for full information on all available charitable or deep-discount airline ticket programs for patients and patient escorts.

Volunteer Pilot Organizations – Our volunteer pilots are available to patients and an escort needing transportation for medical evaluation, diagnosis or treatment.

Long Distance Ground Transportation - Our program provides non-emergency long-distance ground transportation for financially strapped ambulatory patients traveling for treatment.
Website: PatientTravel.org
Phone: 1-800-296-1217

Patient AirLift Services
About: We are a nonprofit that arranges free air transportation for individuals requiring medical diagnosis, treatment or follow-up who cannot afford or are unable to fly commercially.
Website: Patient AirLift Services
Phone: 1- 631-694-7257

Treatment Access/Reimbursement Resources

Cancer Care
About: We are a non-profit organization that provides limited financial assistance to people affected by cancer.
Website: Cancer Care
Phone: 1-800-813-HOPE
Email: info@cancercare.org

Centers for Medicare & Medicaid Services
About: Medicare - We are a health insurance program for people age 65 or older, people under age 65 with certain disabilities, and people of all ages with End-Stage Renal Disease (permanent kidney failure requiring dialysis or a kidney transplant).

Medicaid - Our team at the Center for Medicaid and CHIP Services (CMCS) is passionate about the people we serve, and we are committed to working in close partnership with states, as well as providers, families and other stakeholders to support effective, innovative, and high quality health coverage programs.
Website: Centers for Medicare & Medicaid Services
Medicaid/Medicare: 1-877-267-2323
Medicare: 1-800-MEDICARE (1-800-633-4227)

Co-Pay Relief (CPR) Program
About: We provide direct financial assistance to multiple myeloma patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis.
Website: http://www.copays.org/
Phone: 1-866-512-3861

Good Days
About: Good Days, formerly known as Chronic Disease Fund, exists to improve the health and quality of life of patients with chronic disease, cancer, or other life-altering conditions.
Website: Good Days

HealthWell Foundation
About: Multiple Myeloma Medicare Access (Medicare patients only)
Website: www.healthwellfoundation.org/multiple-myeloma
Phone: (800) 675-8416

Needy Meds
About: We are a national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.
Website: NeedyMeds.org
Phone: 1-800-503-6897
Email: info@needymeds.org

Partnership for Prescription Assistance
About: We help uninsured and financially struggling patients who lack prescription coverage get access to prescription assistance programs that offer medicines for free or nearly free.
Website: Partnership for Prescription Assistance

Patient Access Network Foundation
About: We offer help and hope to people with chronic or life-threatening illnesses for who cost limits access to critical medical treatments.
Website: Patient Access Network Foundation
Phone: 1-866-316-PANF (1-866-316-7263)
Email: contact@panfoundation.org

Patient Advocate Foundation
About: We are national leaders on the forefront of important issues within patient-focused healthcare and serve as the voice of patients in need.
Website: Patient Advocate Foundation
Phone: 1-800-532-5274

RxAssist
About: We are a financial assistance program center for patients.
Website: RxAssist
Email: info@rxassist.org

Social Security Disability & Supplemental Security Income
About: We deliver Social Security services that meet the changing needs of the public.
Website: Social Security Disability & Supplemental Security Income
Phone: 1-800-772-1213

The Leukemia & Lymphoma Society
About: We are the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients.
Website: The Leukemia & Lymphoma Society
Phone: 1-914-949-5213

Myeloma Specific Resources

International Myeloma Foundation
About: The IMF has been on a mission to improve the lives of myeloma patients. With over 196,000 members in 113 countries worldwide, we are the oldest and largest organization dedicated to finding a cure for myeloma.
Website: International Myeloma Foundation
Phone: 1-800-452-CURE (1-800-452-2873)
Email: TheIMF@myeloma.org

Signal Genetics’ MyPRS
About: Our company is dedicated to making its extensively validated diagnostic services available to all patients who need them.
Website: Signal Genetics’ MyPRS
Phone: 1-760-537-4100
Email: info@signalgenetics.com

The Myeloma Survivor Guide by David Visel
About: The Myeloma Survival Guide makes sense of the difficult questions myeloma patients face, dealing with every aspect of life after diagnosis, from creating a wellness team to navigating treatment options to building a financial safety net.
Website: The Myeloma Survivor Guide by David Visel
Discount: To receive a 20% discount code and free shipping with your order, enter Discount Code: SSMMRF20

Cancer Resources

American Cancer Society
About: Together with millions of our supporters worldwide, we help people stay well and get well, find cures, and fight back against cancer.
Website: American Cancer Society
Phone: 1-800-227-2345

American Society of Hematology
About: Our mission is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Website: American Society of Hematology (ASH)
Phone: 1-866-828-1231

Be the Match
About: For people with life-threatening blood cancers—like leukemia and lymphoma—or other diseases, a cure exists. Be The Match® connects patients with their donor match for a life-saving marrow or umbilical cord blood transplant.
Website: Be the Match

Camp Kesem Children
About: We are a nationwide community, driven by passionate college student leaders, supporting children through and beyond their parent’s cancer.
Website: Camp Kesem - Children
Phone: 1-260-22-KESEM (1-260- 225-3736)

Cancer Education
About: We provide online information and original content to cancer patients, their families, caregivers, and healthcare professionals.
Website: CancerEducation.com
Email: webmaster@cancereducation.com

Cancer Forums
About: A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Website: Cancer Forums

Cancer Net
About: Our patient information website brings the expertise and resources of ASCO to people living with cancer and those who care for and care about them.
Website: Cancer Net
Phone: 888-651-3038
Email: contactus@cancer.net

Cancer Network
About: We are the home of the journal ONCOLOGY.
Website: Cancer Network

Cancer Quest
About: We are a cancer education and outreach program at Emory University and provide reliable information about cancer biology and treatment.
Website: Cancer Quest
Phone: 1-404-727-0308
Email: cancerquest@emory.edu

Chemotherapy
About: Whether you're preparing for your chemotherapy journey or managing the side effects, we have the information you need... every step of the way.
Website: Chemotherapy.com
Phone: 1-800-77-AMGEN (1-800-772-6436)

Healing Threads
About: We provide garments that are soft to keep you comfortable, warm to keep you cozy, functional to keep your privacy and dignity, and fashionable to keep your flair.
Website: Healing Threads
Phone: 1-877-647-3900
Email: info@HealingThreads.com

LIVESTRONG at the YMCA
About: Take advantage of this free program for adult cancer survivors. Learn more and find a YMCA LIVESTRONG location near you.
Website: LIVESTRONG at the YMCA

National Cancer Institute
About: We are the federal government's principal agency for cancer research and training.
Website: National Cancer Institute
Phone: 1-800-4-CANCER (1-800-422-6237)

National Coalition for Cancer Survivorship
About: Our mission is to advocate for quality cancer care for all people touched by cancer.
Website: National Coalition for Cancer Survivorship
Phone: 1-877-NCCS-YES
Email: info@canceradvocacy.org

National Comprehensive Cancer Network
About: We are a not-for-profit alliance of 26 of the world's leading cancer centers, is dedicated to improving the quality, effectiveness, and efficiency of care provided to patients with cancer.
Website: National Comprehensive Cancer Network
Phone: 1-215-690-0300

National Patient Advocate Organization
About: We are a national non-profit organization providing the patient voice in improving access to, and reimbursement for, high-quality healthcare through regulatory and legislative reform at the state and federal levels.
Website: National Patient Advocate Organization
Phone: 1-202-347-8009

Oncolink
About: Cancer educational resources for patients and healthcare professionals.
Website: Oncolink.com
Phone: 1-215-349-8895
Email: hampshire@uphs.upenn.edu

Side Effects Support
About: We are dedicated to improving the oral health and overall wellbeing of those fighting cancer.
Website: SideEffectsSupport.com

The Livestrong Foundation
About: We inspire and empower people affected by cancer. We believe that unity is strength, knowledge is power and attitude is everything.
Website: The Livestrong Foundation
Phone: 1-855-220-7777