MMRF Stories


I was diagnosed with multiple myeloma in December 2007 at the age of 42. Unfortunately, I had lived with MM for years and had a lot of bone involvement. Thankfully, kyphoplasty has helped me live a somewhat normal life, but thanks especially to Kathy Giusti and her tireless efforts to get drugs quicker to effectively treat our disease, I am alive today and have hope to live many more years. I am SO grateful for the MMRF and what they continue to do for myeloma patients and their families. This past April my husband and I were able to travel to Italy for our 20th wedding anniversary. I aim to be around for our 50th and to see our daughter graduate, get married, and have a family of her own. I'm on my way--thank you, Kathy Giusti and the MMRF!!


I was diagnosed with MM in October of 2008, after experiencing a severe pain in my right side, which had radiated from a lesion on my 8th thoracic vertebra….Contacting the MMRF was the best thing for me. It gave me hope and seeing how Kathy Guisti has endured all these years. I am in remission, and on maintenance with Revlimid, a drug which was pushed through thanks to the MMRF, and I read the newsletter every month to see what other encouraging drugs are coming on the market, in the event I will need to take them. Thanks to my wonderful husband, Joe, and my incredible children, and my "spirit lifters", (my 5 granddaughters), I am gaining strength every day. It's been a year out of my transplant, and knowing my doctors are associated with the MMRF, gives me confidence that all of the latest advances to treat and one day "cure" this disease, are available to me, and hopefully all of the other families who are going through this.


I just celebrated my 59th birthday, a few months following the second anniversary of my diagnosis with Multiple Myeloma (MM) in August 2009…Although my experience with MM is not a "success story" (yet!), I am extremely grateful for the efforts of the MMRF in championing clinical research re: MM treatment… I remain optimistic and hope that I can survive long enough for additional new drugs to be released that could arrest the proliferation of my cancerous plasma cells. I greatly appreciate the efforts of the MMRF, and my wife and I learned a lot at a recent patient/caregiver symposium in Boston a few months ago. I commiserate with all my fellow MM sufferers, and pray that a cure can be found.


My story is just at the beginning, I guess. I was diagnosed on January 11, 2011 through a bone marrow aspiration and biopsy. Since I'm asymptomatic, my doctor has been "watching and waiting"…. I certainly don't want to rush into anything, and am really glad to be relatively asymptomatic so far. I am very happy to have found the MMRF. I get some hope for my future when I see that there are so many clinical trials and new drug combinations showing some promise. Reading other patient's stories also is such a helpful insight. Thank everyone for sharing. I'll share my story too as it unfolds.


I must admit that I am apprehensive and a bit scared of the bone marrow transplant but I am getting braver every day fuelled by my trust and faith in my oncologist and the team of nurses in the hospital. Information and stories from patients on MMRF also help to soften the load…My family and myself will refer to the MMRF after the transplant for support and encouragement. The outpouring of support, even virtually, give me strength. I appreciate and embrace every moment of every day, each spectacular sunrise from my window.

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